|April Lufriu - Mrs. America 2011|
Retinitis pigmentosa is just one half of the Usher Synrome equation. But it is the vision part - or the loss of vision, actually - that seems to be the far greater disability to manage for Usher patients. My daughters always claim to have a handle on their hearing loss and cope very well in their personal and professional lives. But the vision changes and the challenges that imposes is something else again.
Any awareness, funding, and research on RP will help with the fight against Usher Syndrome, so I am thrilled with this news of April's winning platform. Congratulations to April and her family!
ON WITH THE FIGHT!!!